Ask the expert


Cleft Lip and Palate


I have not seen any pictures of babies with cleft lips in all of the CdLS literature I've come across. Is it because it's not so common, or have the lips been repaired early enough before all the pictures were taken? My daughter also has a cleft palate, which I hear is fairly common.

Answer of our experts

I would say that cleft lip with CdLS is extremely rare, although I have seen it on occasion. It's likelythat when it occurs it could even be unrelated (just by chance), and more likely if there were a family history of cleft lip and/or palate. I would encourage her to be managed by a local cleft palate team (sponsored by the state and usually affiliated with a hospital that has experience with children).

TK 7-13-10

I have not seen any children in my experiences with the CdLS patient population that have exhibited an isolated cleft lip. The clefting of the palate is quite common (20%).

TK 7-13-10

Answer is checked and valid for
Find other pages that share the same topic as this page Mouth, nose and throat3 Mouth, nose and throat14


Mouth, nose and throat

The anaesthesiologist should be aware of the potential difficulty with intubation in individuals with CdLS.

Legal Disclaimer

Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.

Do you have a question you would like to ask?

Ask a Question

Do You urgently need help? Contact the CdLS Foundation USA, Our Staff!


topic holding this topic