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Developmental Issues


Vraag

Will my brother, who has mild CdLS, be able to grow up like a boy without CdLS?

Antwoord van onze experts

Each individual with CdLS is different and, as with any child, it is difficult to predict what his life will be like when he grows up. However, there are probably some generalizations that are safe to make. Since your brother is mildly affected with CdLS, he will certainly continue to make some advances in his physical, emotional, and developmental growth in the upcoming years. Like other boys, he will go through the typical changes associated with puberty. As he matures, your family will probably strive to have him become more independent in activities of daily living, such as bathing, hygiene, dressing, picking up after himself, helping out with chores, etc. Some of these he may learn easily, while others may require more assistance from family and take longer to master. In some individuals with CdLS, there may be tasks that are beyond their ability to learn and, therefore, always be areas that require outside help to complete.

Depending on his level of functioning, he will probably always require a certain level of supervision at home and in the community to insure his safety. This most likely means that as he becomes an adult he will probably continue to live with family or move on to some type of supervised living arrangement depending on your family's wishes and his needs.

One area that most individuals with CdLS struggle with is socialization and friendships. While some are fortunate to find friends among their peers, others never seem to find their niche. This seems to be especially the case with the more mildly affected persons who don't quite fit in with either their developmentally delayed peers or with their non-affected peers. Most families find that the individual with CdLS will require much assistance in connecting with others and making friends. Families find that they are often the main source of meeting the individual's socialization needs, but this is very important for self-esteem.

BC/TK 7-13-10

Antwoord is gecontroleerd en geldig voor
us

Aanbeveling(en)

vaardigheid om te bewegen en met de omgeving om te gaan

R16
Ontwikkelingsmijlpalen dienen zorgvuldig bewaakt te worden.

Aanbeveling(en)

Sociaal functioneren en Autisme Spectrum Stoornissen (ASS)

R56
Een klinische ASS diagnose dient overwogen te worden bij alle individuen met CdLS gedurende hun hele leven, waarbij rekening gehouden moet worden met atypische presentatie.
R57
R57: In aanvulling op gestandaardiseerde ASS diagnostische hulpmiddelen dienen gedetailleerde observaties uitgevoerd te worden om het profiel van sociaal functioneren bij een individu met CdLS nauwkeurig te definiëren.
R58
ASS-specifieke interventies moeten overwogen worden bij alle individuen met CdLS, in combinatie met aanpakken die rekening houden met het bredere profiel van sociaal functioneren van het syndroom.

Juridische disclaimer

Houd er rekening mee dat de Ask the Expert service  is gemaakt door vrijwillige professionals in verschillende aandachtsgebieden. Antwoorden worden niet beschouwd als een medisch, gedrags- of educatief consult. Vraag de Expert is geen vervanging voor de zorg en aandacht die de persoonlijke arts, psycholoog, pedagogisch adviseur of maatschappelijk werker van uw kind kan bieden

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