Demander à l'expert

Developmental Issues


Question

Will my brother, who has mild CdLS, be able to grow up like a boy without CdLS?

Réponse de nos experts

Each individual with CdLS is different and, as with any child, it is difficult to predict what his life will be like when he grows up. However, there are probably some generalizations that are safe to make. Since your brother is mildly affected with CdLS, he will certainly continue to make some advances in his physical, emotional, and developmental growth in the upcoming years. Like other boys, he will go through the typical changes associated with puberty. As he matures, your family will probably strive to have him become more independent in activities of daily living, such as bathing, hygiene, dressing, picking up after himself, helping out with chores, etc. Some of these he may learn easily, while others may require more assistance from family and take longer to master. In some individuals with CdLS, there may be tasks that are beyond their ability to learn and, therefore, always be areas that require outside help to complete.

Depending on his level of functioning, he will probably always require a certain level of supervision at home and in the community to insure his safety. This most likely means that as he becomes an adult he will probably continue to live with family or move on to some type of supervised living arrangement depending on your family's wishes and his needs.

One area that most individuals with CdLS struggle with is socialization and friendships. While some are fortunate to find friends among their peers, others never seem to find their niche. This seems to be especially the case with the more mildly affected persons who don't quite fit in with either their developmentally delayed peers or with their non-affected peers. Most families find that the individual with CdLS will require much assistance in connecting with others and making friends. Families find that they are often the main source of meeting the individual's socialization needs, but this is very important for self-esteem.

BC/TK 7-13-10

La réponse est vérifiée et valide pour
us

Recommandation(s)

Capacité à se déplacer et à manipuler l'environnement

R16
R16 : Les étapes du développement doivent être surveillées de près.

Recommandation(s)

Fonctionnement social, y compris les TSA

R56
R56 : Un diagnostic clinique de trouble du spectre autistique (TSA) devrait être envisagé chez toutes les personnes atteintes de SCdL tout au long de leur vie, en tenant compte des présentations atypiques.
R57
R57 : En plus des outils diagnostiques standardisés des TSA, des observations fines doivent être réalisées pour définir avec précision le profil du fonctionnement social d'un individu atteint de SCdL.
R58
R58 : Les interventions spécifiques aux TSA devraient être envisagées chez tous les individus atteints de SCdL en combinaison avec des approches qui tiennent compte du profil de fonctionnement social plus large du syndrome.

Avis juridiquer

Veuillez noter que le service Demandez à l'expert est composé de professionnels bénévoles dans divers domaines d'intérêt. Les réponses ne sont pas considérées comme une consultation médicale, comportementale ou éducative. Demandez à l'expert ne remplace pas les soins et l'attention que peut fournir le médecin, le psychologue, le conseiller pédagogique ou le travailleur social de votre enfant.

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