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Ear Tube Surgery Concern


My son recently had ear tubes placed, as well as nasal and ear polyps removed. The ENT noticed during the placement of the ear tubes that the consistency of the fluid in his ears was that of "solidified gelatin." He had not observed this before and did not know if it was related to CdLS. Can you provide me with any information?

Answer of our experts

"Solidified gelatin" is kind of an unusual description. Ordinarily, there is nothing different about the fluid found in the ears of children with CdLS compared with fluid found in the ears of normal children with serious otitis media (inflammation of the ear). However, if that was the child's first set of ear tubes, the fluid had been present several years. During that period of time, the typical "glue ear" fluid can turn extremely tenacious and even solid. If there have been recurrent infections, it can sometimes even contain partially calcified plaques.

RS/TK 7-13-10

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Ears and hearing

Hearing should be assessed in individuals with CdLS at an early age and should be followed up over time. Those with severe sensorineural hearing loss should be assessed for auditory neuropathy.
Regular eye (ophthalmologic) and ear, nose and throat (otolaryngologic) evaluations are recommended in adults with CdLS.
Otitis media (middle ear infections) with fluid build up and sinusitis in individuals with CdLS should be considered and treated according to the national guidelines for the general population.

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