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G-tube Removal
Question
My daughter had a Nissen-Fundoplication procedure done over 10 years ago. She currently eats and drinks by mouth. She does not use her G-tube. Is the Nissen still functional even though now she can burp? Can the G-tube be removed? Has this been done with other children with CdLS? What are the consequences?
Answer of our experts
Sure it can be removed. If it has been over 10 years then it is unlikely to close if you just take it out. Some surgeons will try that anyway and if it is still leaking after a couple of weeks they will close the stoma (usually a short outpatient surgery). I would talk to the surgeon who did the tube and Nissen or another general surgeon if they are not available and her gastroenterologist doctor. It shouldn't matter if the Nissen is intact or not if she is doing well
CP/TK 7-13-10
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Recommendation(s)
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