Ask the expert


Raynaud's phenomenon


Do individuals with CdLS respond differently to various temperatures?

Answer of our experts

Cornelia de Lange Syndrome is a complex syndrome affecting multiple aspects of the body. It does appear that there is a sensitivity to external temperature, at both extremes. At cold temperatures, many individuals appear to experience Raynaud's phenomenon, or severe pain in their fingers and toes with color changes. Hot temperatures appear to be poorly tolerated by many individuals who may become fatigued or listless. The causes of these phenomena are unknown. Exposure to extreme temperatures should be minimized

TK 7-13-10

Answer is checked and valid for
Find other pages that share the same topic as this page Senses3 Health difficulties in CdLS...

Legal Disclaimer

Please take note that the Ask the Expert service is comprised of volunteer professionals in various areas of focus. Answers are not considered a medical, behavioral, or educational consultation. Ask the Expert is not a substitute for the care and attention your child’s personal physician, psychologist, educational consultant, or social worker can deliver.

Do you have a question you would like to ask?

Ask a Question

Do You urgently need help? Contact the CdLS Foundation USA, Our Staff!