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Secretin


Question

A parent of a child with CdLS mentioned the use of secretin with autism and wondered if there is any possible benefit to CdLS as well.

Answer of our experts

Secretin has been shown "not" to work in autism after controlled trials and I would not expect any benefit in CdLS

EK/ TK 7-13-10

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Recommendation(s)

Social functioning including ASDs

R56
A clinical diagnosis of autism spectrum disorder (ASD) should be considered in all individuals with CdLS throughout life, taking into account atypical presentations.
R57
R57: In addition to standardised ASD diagnostic tools, fine-grained observations should be carried out to accurately define the profile of social functioning in an individual with CdLS.
R58
ASD-specific interventions should be considered in all individuals with CdLS in combination with approaches that consider the broader social functioning profile of the syndrome.

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