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Tethered Spinal Cord


Is a tethered spinal cord common in CdLS? My son, who has CdLS, also has a tethered spinal cord. Our Neurosurgeon did not think that he had ever known of a case where a child who has CdLS had a tethered spinal cord.

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It seems that there may be a higher incidence of such spinal cord things such as tethered cord or occult spinal dysraphism in CdLS. I think we need to look more formally at this. However, treatment for a tethered cord in CdLS would be no different though, e.g. surgical release.

CB/ TK 7-13-10

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Autonomic nervous system

Seizures in individuals with CdLS should be treated using the general management schemes.
An MRI of the brain should be considered only if the individual with CdLS shows neurological signs other than microcephaly (smaller than normal head).

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